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Kansas City care partners share their experience with Alzheimer's: 'It’s been a difficult road’

A woman with dark hair speaks into a microphone in a recording studio.
Halle Jackson
/
KCUR 89.3
Prisca Mendez Asaro is the program director for the Alzheimer’s Association Heart of America Chapter. A new national report by the association reveals that many caregivers often need help navigating the healthcare system.

Nearly 7 million Americans are living with Alzheimer’s or some other form of dementia, and those who care for someone with the disease often need help navigating services. A new Alzheimer's Association report offers insight on how to make the process easier.

Nearly 7 million Americans are living with Alzheimer’s or some other form of dementia, a progressive brain disease which affects memory, thinking and behavior.

A dementia diagnosis is life-altering, and a new national report by the Alzheimer’s Association reveals that many caregivers often need help navigating the healthcare system.

The report includes a list of services that would be most useful to caregivers, including a 24/7 support line and help scheduling appointments.

“Alzheimer's is a grief that doesn't really end, so you come to an acceptance of it,” Cindy Beasley, who cares for a family member with early-onset Alzheimer’s, told KCUR’s Up To Date. “But then there's still those daily losses that are really tough to deal with.”

  • Prisca Mendez Asaro, program director for the Alzheimer’s Association Heart of America Chapter
  • Cindy Beasley, care partner for family member with early-onset Alzheimer’s 
  • Nina Westvold, care partner for family member with early-onset Alzheimer’s
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