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In January, a Parkville family learned their 8-year-old daughter had a rare illness. Though there is no cure, there is a drug that could help slow the disease. The problem? It costs more than $200,000 a year. Plus: Kansas politicians make bold claims about how to stop population declines in rural communities. Their efforts may not be enough to reverse the trend.
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In January, the Anstaett family learned their eight-year-old daughter had Batten disease, a rare condition with a difficult — and eventually terminal — prognosis. The drug showing promise in slowing the disease isn't covered by their insurance because it's still in clinical trials.
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A Johnson County partnership is offering people with Down syndrome and their caretakers access to therapy services. Down Syndrome Innovations and the county-run mental health center will provide a mental health clinician for eight to 12 sessions per patient.
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20 years after scientists finished the sequencing of the first human genome, scientists around the world — including from the Stowers Institute in Kansas City — have taken another monumental step.
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Kevin Wake is sharing his experience being denied proper treatment in an emergency room in order to draw attention to health disparities faced by sickle cell patients.
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Donavon Decker became, in more ways than one, an ambassador of limb girdle muscular dystrophy type 2D, a rare degenerative disorder. But decades after he participated in patient trials and fundraised for research, drug companies are still nowhere close to a cure.
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She already has had to bury her 17-year-old daughter Claire. Gwen Hartley's mission now is to have Kansas lawmakers help save the life of her 12-year-old…
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When Kelly Ranallo's first child was born 21 years ago, something seemed wrong, but no one could put a finger on it. When Ranallo’s second child was born,…
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Scott Hawley is a geneticist at the Stowers Institute. In this encore presentation, we hear how his career has its roots in a high school gym class ...…
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Geneticist Scott Hawley has a way with words — especially when it comes to explaining science to non-scientists.For example, he remembers the connections…
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He's a man with many titles: investigator; Dean of the Graduate School at the Stowers Institute; Professor of Molecular and Integrative Physiology at KU…
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An Alzheimer's diagnosis impacts not just the person who has the disease but their family and friends who take on a caretaking role, as well. Too often,…